So my patience ran thin...finally. My mom was asking if we'd heard from Mayo yet and we hadn't so she thought that was weird. She has dealt with Mayo on many occasions and thought there's no way it should take this long. She said I should call, but I didn't want to be that annoying person who has no patience. Well, I gave it about a week after that conversation before I decided I'd had enough. I should've ran out of patience and called earlier....like in December.
I called Mayo last Wednesday and left a message with the lady I'd need to talk to. She called me back the next day. She knew exactly what I wanted to know and said, "Well yes I can tell you the status...I haven't received anything on him"........uh...come again?!?! WHAT!? You're kidding! Holy WTF of all WTF's. I quickly said, "you're kidding?!" She says no. Double checked to make sure she had our last name spelled right and sure enough. Not a damn thing. Wow. My furious level just went through the roof. She was very nice and let me know once she gets word, she will contact us within 24 hours. 24 hours!?! Our dumb Dr. said it'd be 6 weeks before we heard word. Hence the reason I've waited 2 months to check on it. My furious level went even higher. I couldn't believe it.
I called his office and left a message with his assistant, who called me back later that day. She was never told by Walshaw that she was to put in Dustin's info to Mayo. WHAT?! Ok, so this time I wasn't so surprised. I knew that's what had happened. Over the past 3 month's we have discovered that this Dr. is a dip shit. I think the poor assistant was terrified I was going to chew her out, but really it wasn't her fault. She didn't know. He told her he thought he had let her know, but he never did. And I believe her, not him. She said she'd put the paperwork in right away...so with that, we should hear from Mayo in 2 days or less.
I really can't believe he did this. We had the appointment on Dec 7th when he first said he'd put it in. Dustin had another appointment the first week of January and he asked if we had heard from them. Really? You're going to ask about it but never even put his info in to Mayo? This wouldn't be the first time where I questioned his competence.
1. When Dustin was first diagnosed I did a lot of reading. I learned he needed to be on pill called Phosphorous Binders to take with each meal. After we were released, no one had prescribed those pills. When Dustin went up to Tucson to do dialysis because of the reaction he was getting in Safford I told him to ask Walshaw if he needed these pills. Dustin asks and Walshaw gives him this perplexed look like "Yeah you need them...hasn't anyone prescribed them to you?" Ummm...no retard. That's your job. You're my nephrologist.
2. While at that visit also, Walshaw tells the nurse to get him 2 dialyzer's to take home to Safford for his last to Hemo treatments here. The nurse comes back and says there is only one. He says ok. Dustin goes to do dialysis the last time and doesn't have the right dialyzer and Walshaw says he sent 2 home. He sent 1.
3. Dustin (along with 2 other of his patients) had an appointment with him one morning. We waited an hour for him to show, left and got lunch and came back and waited another 45. The guy next before us waited 2-3. The little lady waited 45. Walshaw shows finally and "didn't know we all had appointments" Are you kidding?
4. Our visit to the TMC ER in December. Dustin's PD nurse was afraid he had an infection so she sent us to TMC. She called Walshaw and told him we were coming. We got there, got checked in late at night and expected to see him in the morning. Finally at 11 a.m. Dustin calls his cell phone and he claims he had no clue we were there.
5. The son of bitch never told his assistant to give Dustin's info to Mayo.
Basically I'm done with this guy. It is rather convenient that he makes the trips to Safford for appointments, but that doesn't count for jack if he doesn't do what he tells us he will. We've been waiting to get all this testing done before we do this last IVF and if he would've just done what he was supposed to do then Dustin's testing would be done and potentially we'd be testing live donors. Not to mention the fact that we really just want to get this transplant done. Even if there was no IVF. We want to get it done and over with. I've decided we will get this transplant process started then I will talk to Mayo about the possibility of switching to a nephrologist through them. True it will suck for Dustin to have to drive to appointments, but not as bad as it sucks to sit around waiting for transplant information that was never going to come.
Monday, February 14, 2011
Saturday, February 5, 2011
(I started this on Jan 3...Now I'll finish it on Feb 5th. haha. I'm on the slow boat)
November and December have felt like the longest months ever! They just dragged and dragged. I'm thrilled to see 2010 leave because frankly from beginning to end, it was a real bitch to me.
Dialysis....
So the Hemo dialysis that Dustin had to start out doing didn't treat him right. Here in Safford they use different filters then they do in Tucson and the filters here caused him to have an allergic reaction. He couldn't breath and they had to hook him up to oxygen & give him nitroglycerin. He had to go to Tucson to try out their filters and he had no problems. Luckily he was a few days from starting the home dialysis so they sent him with a filter to finish off here and not have to go to Tucson again.
Home dialysis has been going pretty good. I went to the first training session but it was forever long and I had to get back to work. After that I didn't go back with him and he's done it all himself. Quite impressive. He has to go into his dialysis room, drain the fluid in his abdomen, fill with new fluid. Takes about 30/45 mins or so for the whole process. He has to do that 4 times a day. It's worked out good and he doesn't get tired or feel completely drained like he did after Hemo.
Jan 3rd Dustin went back to work! Yay! I think it'll be good for him to get back to normal life and do more then laying around watching TV. Plus Monday's are my day off so I can actually get something productive done. It seems like I have a harder time cleaning and getting things done when he's here...not so sure why that is.
Our Floor...
Oh our poor, poor floor. When we got back from Tucson I went and picked out a new floor at Carpet, Tile and More. It's called Konecto and is a fake wood. Mandy has it in her house and likes it a lot and so I went with it. John was super nice and gave us a deal (when he didn't have to) because of why we were laying new floor & he really likes Dustin. It was way kind of him. Brandon agreed to lay it along with some help from my other bro in laws.
The day after Thanksgiving they started to lay it. It went down fine, didn't seem to have any problems but then I noticed some planks seemed to be lifting. Then I noticed a lot of planks seemed to be lifting. Then I noticed almost ALL the planks seemed to be lifting. I was like holy crap you're kidding me. Some lifted a little & some lifted enough to stub your toe on. I couldn't believe it. Dustin went and talked to the guys at the shop and they said to try to heat activate the glue and role it down. So with a heat gun and hand roller we did the kitchen. Looked good....for a day. By morning it had all lifted again. I was so mad. I mean really? My floor can't even stay down and work? It just was something I didn't need. The next week the Konecto Rep came by and took a look at it and it ends up we have a faulty floor. The glue just didn't stick. I couldn't believe it. Just my luck. haha. Thank goodness that was the case thought because they will now send me new floor. We will have to rip all this up and start over. That really sucks, but is better then having a lifting floor I guess.
Our Diswasher...
Well when they ripped up the old floor, my bro in laws discovered our dishwasher was broken....pretty much since the day I got it. For 6 years or so it's been leaking behind out of the tube. They said it was a mess, but luckily it didn't affect the cabinets. Unluckly, it was 2 days after Thanksgiving and I had a huge sink of nasty pots and pans. Luckily again, it is fixable and under warranty so we won't have to buy a new one. Unluckly again, It's Feb 5th & it's still not back. Rumor has it, we may get it this Thursday. I hope so.
Transplant...
So the Dr.'s put a referral into Mayo Clinic to get started with the transplant. He put it in around the 2nd week of December and he said it would be 6 weeks or so before we heard from them. We Still haven't heard. I'm starting to get a bit frustrated. I just want to get this going. Hopefully it'll be soon!
Operation IVF....
So I talked to my Dr. a bit about the last IVF. Apparently this kidney issue will make Dustin's sperm count deteriorate quite a bit so just to be safe, we have had some frozen and stored. Just in case we need to use it. He said we will wait to see if I am a match and then do the IVF. If I get pregnant before donation then I can donate my kidney to Dustin potentially as soon as 6 weeks after delivery. Getting pregnant after donating a kidney isn't off the table either. He said that it puts you at a higher risk pregnancy, but doesn't mean you can't get pregnant (of course, I already can't do it as it is so I'm sure one kidney wouldn't help!! haha) I would just have to wait for awhile so my body can adjust to one kidney and then they'd see how it's functioning. Of course this is all only relevant if I'm a match. This is partly why I want to speed up the transplant process. I really want to get this last IVF figured out!! I probably won't be a match after all this anyway! haha!
November and December have felt like the longest months ever! They just dragged and dragged. I'm thrilled to see 2010 leave because frankly from beginning to end, it was a real bitch to me.
Dialysis....
So the Hemo dialysis that Dustin had to start out doing didn't treat him right. Here in Safford they use different filters then they do in Tucson and the filters here caused him to have an allergic reaction. He couldn't breath and they had to hook him up to oxygen & give him nitroglycerin. He had to go to Tucson to try out their filters and he had no problems. Luckily he was a few days from starting the home dialysis so they sent him with a filter to finish off here and not have to go to Tucson again.
Home dialysis has been going pretty good. I went to the first training session but it was forever long and I had to get back to work. After that I didn't go back with him and he's done it all himself. Quite impressive. He has to go into his dialysis room, drain the fluid in his abdomen, fill with new fluid. Takes about 30/45 mins or so for the whole process. He has to do that 4 times a day. It's worked out good and he doesn't get tired or feel completely drained like he did after Hemo.
Jan 3rd Dustin went back to work! Yay! I think it'll be good for him to get back to normal life and do more then laying around watching TV. Plus Monday's are my day off so I can actually get something productive done. It seems like I have a harder time cleaning and getting things done when he's here...not so sure why that is.
Our Floor...
Oh our poor, poor floor. When we got back from Tucson I went and picked out a new floor at Carpet, Tile and More. It's called Konecto and is a fake wood. Mandy has it in her house and likes it a lot and so I went with it. John was super nice and gave us a deal (when he didn't have to) because of why we were laying new floor & he really likes Dustin. It was way kind of him. Brandon agreed to lay it along with some help from my other bro in laws.
The day after Thanksgiving they started to lay it. It went down fine, didn't seem to have any problems but then I noticed some planks seemed to be lifting. Then I noticed a lot of planks seemed to be lifting. Then I noticed almost ALL the planks seemed to be lifting. I was like holy crap you're kidding me. Some lifted a little & some lifted enough to stub your toe on. I couldn't believe it. Dustin went and talked to the guys at the shop and they said to try to heat activate the glue and role it down. So with a heat gun and hand roller we did the kitchen. Looked good....for a day. By morning it had all lifted again. I was so mad. I mean really? My floor can't even stay down and work? It just was something I didn't need. The next week the Konecto Rep came by and took a look at it and it ends up we have a faulty floor. The glue just didn't stick. I couldn't believe it. Just my luck. haha. Thank goodness that was the case thought because they will now send me new floor. We will have to rip all this up and start over. That really sucks, but is better then having a lifting floor I guess.
Our Diswasher...
Well when they ripped up the old floor, my bro in laws discovered our dishwasher was broken....pretty much since the day I got it. For 6 years or so it's been leaking behind out of the tube. They said it was a mess, but luckily it didn't affect the cabinets. Unluckly, it was 2 days after Thanksgiving and I had a huge sink of nasty pots and pans. Luckily again, it is fixable and under warranty so we won't have to buy a new one. Unluckly again, It's Feb 5th & it's still not back. Rumor has it, we may get it this Thursday. I hope so.
Transplant...
So the Dr.'s put a referral into Mayo Clinic to get started with the transplant. He put it in around the 2nd week of December and he said it would be 6 weeks or so before we heard from them. We Still haven't heard. I'm starting to get a bit frustrated. I just want to get this going. Hopefully it'll be soon!
Operation IVF....
So I talked to my Dr. a bit about the last IVF. Apparently this kidney issue will make Dustin's sperm count deteriorate quite a bit so just to be safe, we have had some frozen and stored. Just in case we need to use it. He said we will wait to see if I am a match and then do the IVF. If I get pregnant before donation then I can donate my kidney to Dustin potentially as soon as 6 weeks after delivery. Getting pregnant after donating a kidney isn't off the table either. He said that it puts you at a higher risk pregnancy, but doesn't mean you can't get pregnant (of course, I already can't do it as it is so I'm sure one kidney wouldn't help!! haha) I would just have to wait for awhile so my body can adjust to one kidney and then they'd see how it's functioning. Of course this is all only relevant if I'm a match. This is partly why I want to speed up the transplant process. I really want to get this last IVF figured out!! I probably won't be a match after all this anyway! haha!
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